Facial Paralysis: Anthony’s Story

Facial Paralysis: Anthony’s Story


[MUSIC] I had terrible headaches for
about three weeks. I was diagnosed in April with a
four centimeter Acoustic neuroma brain tumor. And then I had surgery
to remove the tumor and it was wrapped around
my facial nerve. [MUSIC]>>He was told that
the neck was gonna recover. And he woke up from the surgery
with a full paralysis, which is not too unusual. And most of the time,
you just watch and it recovers. Unfortunately for him,
it had been over a year and there was no recovery.>>It’s a real struggle to talk,
to eat. I drool, I spill stuff out of my
mouth and my eye is really bad. I’m always, constantly,
touching my eye. It’s one of the most challenging
things, having facial paralysis.>>In general, facial paralysis can make a big
difference in people’s life. The things we see is
just the surface, but emotionally they don’t
want to socialize. They don’t want
to go out to eat. They feel like people
are staring at them, even when we are not
staring at them.>>I wanna be able
to communicate. I wanna talk, I wanna feel. I don’t, like my face
doesn’t feel normal. Not so much everybody looking at
me, but it’s very uncomfortable. I feel right now, today, I feel worse than when
I had the brain tumor. I don’t wanna go on like this. There’s gotta be something that
I can do to make it better. Show how you fix my smile
every night, show them.>>He told me stories about
his daughter asking him when he was gonna smile again. And so, I was obviously
very touched by that story.>>He looked at my personal
needs and he knew how important it was to me, and I felt that
he genuinely cared about me.>>I actually really encouraged
him, and I could see him try to smile when I told him that
we had good options for him.>>My expectations, I hope
that my face is straight, so I could talk normal and help me
in my everyday activities and my communications. And my eye, just being able to
blink my eye when I’m driving without doing it with my hand.>>Okay.>>You’ll see right away, you’ll
be able to close your eye.>>Okay.>>There may be
a little bit of a gap->>Okay.>>But much better.
But if you look at the face as
a whole, the left side talks to the right side, and the right
side talks to the left side. We smile with our eyes, we talk with our eyes,
we blink and protect our eyes. We eat,
we have to control our lips. When your face is paralyzed,
all those things get affected. And we wanted to make sure
that he could blink again, spread tears over his eyes and keep it moist, so it doesn’t
dry and cause eye problems. The second thing was, I wanted him to breathe
very well through his nose. And for him, he was focused
on being able to smile. We want to make
sure he can smile. Fortunately for him, all the muscles that move
the face were still alive. They hadn’t been out of
commission for too long. So, all I needed to do was to
find a way to get a nerve to talk to those muscles again. [MUSIC]>>With the nerve transfer
that Doctor Boahene did, I bite to make it smile and
make it move. So, the intention
is with therapy, that the brain will
retrain my facial nerve on the affected side to act
the same as the good side. So, I can blink normally and
function without having dry eye all the time,
and I’ll smile without biting. Where I hope to be in a year or two is I could smile
without biting. That’s the ultimate goal. But where I am right now,
today, even with biting and smiling is 100 times better than
where I was without biting.>>So in spite of all
that he’s gone through, he’s kept a positive attitude. So that kinda is infectious, you
see him, you want to help him. With the distorted smile he has,
you can already tell that there’s a smile
waiting to come out.>>Doctor Boahene just gave me, I guess the drive that you’re
gonna get better, don’t give up. [MUSIC]

17 Comments

  • Angelina Garcia says:

    He's someone that I can look up to but I'm not planning to get any surgery to fix my face

  • James Temple says:

    Aw this really touched my heart. The left side of my sister's face is paralyzed. As a baby, she had a surgery to remove cysts from her face and neck and the surgeon damaged her facial nerves. She has gone through some facial reanimation on surgeries, but they were unsuccessful. Within the last year, she had a gold weight put into her left eye to help it close better. Understandably, it has been very tough on her.

  • Carlos Ghernandez says:

    🙁 my mom just got this idk what to do

  • Joy Arboleda says:

    Good AfterNoOn on you THE GOODoctors ,,, 1st how can I officially contact you ? 2nd please help me with have mercy on me and my problems is CURSESICKness "the bell palsy" for long 14 years SUFFERING !… i hope YOUnderstanding.
    (: GODIOS BLESS TO YOU AND YOUR BELOVED FAMILY :)

  • Fab says:

    Does it have solution without any surgery 100% or near? please someone tells me. :/

  • the one and only real JOKER says:

    I got burn for a HOUES AND half TO MOVE AND DONT HAVE THE FUCKEN MONEY MY DAD JUST died MY KID HAS cancer AND NOW MY WIFE JUST GOT THIS FACIAL BULLSHIT I AM REALLY STARTING TO NOT GIVE A FLYING MOTHERFUCK WERE THE FUCK IS BITCH ASS STUCK UP GOD WHEN YOU NEED HIM FUCK LIFE ALREADY

  • your mom says:

    I have bell's palsy also, but my face moves better and it's not as bad as it was before, at all. I have a cyst in my brain, I think that's where it started.
    I can also blink.

  • Asmr Pastey says:

    I was diagnosed with a acoustic neuroma aswell. Woke up from my first surgery my face and everything was normal. The tumor regrew in less than 6 months I got surgery again and this time I woke up with a tracheotomy, feeding tube, and a Tarsorrhaphy. A few months later I got a facial nerve transfer from my thigh. Now that was April of last year and now almost a year later and I’ve had no Improvement. His story really touched me because that how I exactly feel I don’t socialize anymore, I don’t want to even leave my house because I feel like people are going to stare at me and laugh. I want to feel beautiful and confident again.

  • Monita G says:

    I can relate except that I was born with it now I m 24 yo and people just come to me and ask me what's wrong with your face…to th point I became less smiley person to avoid their questions..its painful

  • Jeetu Nagpal says:

    Hi…I m also suffering from Bell's palsy. Brother get recover soon .. God bless u ..

  • Sssimply Nancy says:

    I have this to

  • James B says:

    I have paralysis on my right side because I was beaten up i hate it, I would never date and will not meet people really. I grew a beard that hides it somewhat, if I was brave I'd kill myself.

  • Manish Arora says:

    Weakness in facial muscles can cause Bell's Palsy
    disorder. My friend suffered from this disorder. She used  Bell's Palsy 
    Care Pack" offered by "Planet Ayurveda". It was really
    effective to strengthen her facial muscles. Use this care pack if you also have
    Bell's Palsy disorder.

  • Tanvi Gupta says:

    I am one of them..

  • Grubbs Grady says:

    my face isn't this bad but i just missed feeling both of my eyes close fully for 1 night

  • Moose Pass Hippie says:

    It has been 5 years. Is there an update on Anthony?

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